If this is the best...

So my mum just asked me... 

"If this is the best it gets, how would you be?"

And my response...

"Disappointed, but still really happy"

To be honest, if this is the best it ever got, where a bad day is equal to what use to a good day... then thats ok!

Day 100

So today is day 100! I have had 199 injections of octreotide. 

My life has changed sooo much since starting Octreotide. Previously, on Christmas day, I would barely make it to 2pm before I was a wreck with pain and wanting to sleep.... this year, I made it to 8pm before I started to feel really tired!

I have only seen midnight on new years eve once in the last few years... this year, I made it to 1am!

This week I have had 3 late nights (1am or later)... I haven't done this in years!

25th June isn't far away! I do continue to hope and pray for further improvement, but if this is as good as it gets, and it stays like this, I will be happy!