Im not getting my hopes up, and I am remaining cautiously optimistic... but I think... think... that I am getting really close to a day without headache!
Still battling with the ankle and being on crutchers which is resulting in headaches from the neck, but the headaches from the IH are minimal. I have had several brief moments each day for the last few days were I have had... NO HEADACHE!!!!
So we are getting there!
Back to the Neuro this morning. Since I last saw him I have lost 10kg and am down to pain levels of 3/10 all but everyday! and haven't had any pain killers for the head in almost 3 months!
WOO!
WTG Kayla! I am so happy for you!!! I am glad the octreotide is working. My heart is happy for you and it alone and is weird as it is like a sense of peace and happiness has overcome me. Maybe because now I am not alone and it is helping you and hopefully others. I am as excited for you as I was for myself when I was on treatment. I am hopeing that you will in the be IH syptom free and enjoy quality of life as you should.
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