SHOPPED TILL I DROPPED!

So I have been doing pretty well lately... On Saturday I was able to go shopping with mum. Started at 8am with taking the car for a wash and got home around 4pm... normally come about 10am I am a wreck and ready to head home! But nope... Made till about 3 before I started to feel really bad!

Head is alittle off today, but only about a 5 or 6...which is still really good! Spent the weekend doing uni on Friday night and Sunday, which won't be helping!

Hopefull will start to get consistant 3's soon! I think that because the monthly injection didn't work, when I started the daily again last week it was like starting from square one...

Feeling a little off....

Im feeling a little off today... not entirely sure why... Have a headache (but its not the same as my normal IIH headache), and my whole body aches! Hoping I'm not coming down with something!

Despite that... the head is doing well! Improving a little more each day!

Back to Daily Injections... Feel heaps better already!

Saturday morning I still off the daily injections (so much for the monthly one working!)...

I had a show to go to and was in soooo much pain by the middle of the day. Pain level had to have been a 9/10!

At 6.00pm I started my injections again. Pain level was 9/10, and I had a party to go to... It was the last thing that I wanted to do, but I went anyway. By 10pm, the pain level had dropped to 6/10! I couldn't believe it!

Sunday I felt like I had a hangover (or what I assume a hangover would feel like), so I slept the day away.

Today, Monday, pain level is about a 7/10... so the numbers are coming down as the octreotide gets back in to the system!

Switching Protocols

So when I started I was planning on doing P3... Daily injections for a month, monthly injections for 5, and then finish with daily...

I had my first monthly last saturday, and ever since I have been getting progressively worse... So we have decidied I will stick to the daily ones, therefore swap to P1...

Maybe I was doing better than I thought....

The head hurts today... probably about a 7 or 8... which makes me realised that even last week when it was overcast... it wasn't that bad!

Gives me a bit of relief to know... was really starting to worry!

Any chance of the headaches being a 2 on a regular basis within the next 2 1/2 weeks?...

To be headache free by my Birthday... don't know that I could ask for a better present than that!

Update... sorry I have been slack!

Wednesday wasn't too great because it was overcast and ick! Thursday however was much better! Was even able to have a short walk after dinner!

Today is a bit like wed... but thats because its overcast and ick again!

Booked for LAR tomorrow!

Scared of sneezing... No more!

Woke up this morning, and just after my injection I felt a massive sneeze coming... I braced myself for the normal brief vision loss and subsequent floaties, and expected head pain.... But it didn't come!!! YAY!
Head started better than the last few days... then I was naughty and lifted the work mail bucket... woops! But still better than the last few days!

Booked in with a friend who is a nurse for Saturday's Sandostatin injection... Can't wait till the daily ones are done!

Day 14

Sorry... I have been a little slack... Things haven't been too crash hot this week. Had a monster migraine last night. 

Hit the full dosage this morning, so will continue for a week and then go to monthly... Hoping that we will see a vast improvement this week, before we go to the monthly ones. 

Would kill for a decent night sleep!