Tomorrow is the last day of Octreotide. I don't regret it, not in the slightest.

It worked WONDERFUL while I was on it at the full dose.

Only one symptom remains away, and for even that, I am thankful! Just hope it doesn't return on Saturday when tomorrow's dose is over.

Would I still recommend it... DEFINATELY!

Final Days

So today is the last day of 1000mcg per day. From here on out I will be reducing the meds every 9 days, by 100mcg each time.

I am happy, because 10 needles a day wears thin real quick.

Im also, to be honest, really scared as to what is to come. Im am so frightened that it will all come back once im off the meds, and then this would have been a complete waste of time and money.

Continueing to pray and hope that everything stays well....

changes in dosage, allergies, rashes... but all happy!

oops... update time...

So the manufacturers ran out of 0.5/ml... so I am now on 0.1/ml which means I am having 10 needles a day instead of two! My stomach is killing me from the needles!

The first 2 times I did the 5 x 0.1 I had an allergic reaction. The first time resulting in a fever for 2 days, the second resulting in a rash that covered my WHOLE body... it was gross!

So we slowly have spread them out again... starting at 2 x0.1 every 4 hours, to now being on 4 x0.1 am, 2 x0.1 lunch and 4x0.1 pm....

Happy point... I forgot my lunch time ones today and didn't have them until 4pm... and felt FINE! WOOP! Gives me relief to know that when I start the taper off process in a month, I should be ok!

YAY!

If this is the best...

So my mum just asked me... 

"If this is the best it gets, how would you be?"

And my response...

"Disappointed, but still really happy"

To be honest, if this is the best it ever got, where a bad day is equal to what use to a good day... then thats ok!

Day 100

So today is day 100! I have had 199 injections of octreotide. 

My life has changed sooo much since starting Octreotide. Previously, on Christmas day, I would barely make it to 2pm before I was a wreck with pain and wanting to sleep.... this year, I made it to 8pm before I started to feel really tired!

I have only seen midnight on new years eve once in the last few years... this year, I made it to 1am!

This week I have had 3 late nights (1am or later)... I haven't done this in years!

25th June isn't far away! I do continue to hope and pray for further improvement, but if this is as good as it gets, and it stays like this, I will be happy!

No longer the only Aussie!

So i'm no longer the only Aussie on Octreotide, and I am stocked! So happy for Ken, who has received his first script for Octreotide. I am praying that it works as well for him as it has for me.

Me... Im doing pretty well! Almost 3 months in, and (despite other issues) I feel great. This has been the best birthday/christmas present for the next 10 years!

Neuro was HAPPY!

So I went and saw my Neuro yesterday for a check up after starting the Octreotide. To say he was happy might be an understatement.

He was thrilled with my progress, and wanted lots of details so he can tell others!

He doesn't want to see me again until April, at which stage I will have started the coming off process!

So excitted! and I continue to Praise the Lord everyday for giving me the opportunity to be on this medication!